Tiring day at BMT clinic

Yesterday was such a tiring day at the BMT clinic that I did not have enough energy left when we got home to try to post to the blog. I suspect that the tired feeling is due to the 9 days spent lying on my back in St. Mark's hospital and the feeling persists. I would prefer to be lying on the couch right now trying to read rather than sitting here at the computer adding to the blog.

Thanks to the Presidents Day holiday traffic was very light on the roads leading to the Huntsman Hospital and there were only a few patients waiting to be seen, but I waited quite a long time and it was amost 11:00 before I was seated in the Infusion room waiting for completion of my blood work. Abby (PA) brought the bloodwork report to me and said that the Aredia infusion could be completed in 2 hours and then they would give me a Velcade shot. I reminded her that I had received a letter from Humana denying Velcade because of some lack of showing by Huntsman that my condition required the Velcade. She said that Huntsman had appealed the decision and I would get the shot and if further appeal was required they would cover the cost until the question was resolved. Malene, one of the Infusion nurses, told me that Abby wanted me to resume taking Lisinopril, which had been prescribed by Dr. Shah, nephrologist, and that I had been taking when I first visited the Huntsman clinic. Emma told me that she takes the same drug and that it is part of her treatment for high blood pressure.

Emma and I were both surprised that noon had come and gone and we had not been offfered a choice of sandwiches for lunch. That was the first time that I had been at the clinic afer 11:00 AM that I had not been asked what kind of sandwich I would like for lunch. Both of us were hungry and while Emma considered what she could fix for a late lunch I pulled into a nearby Corner Bakery and found when we went inside that daughter Nancy and her 2 daughters Kersten and Laura were just starting lunch, quite a pleasant surprise. We stayed until all of us had completed a late lunch and then had to stop at Walgreen's drugstore to have a prescription for cyclophosphamide filled, which could not be filled at the Huntsman pharmacy because they seize any holiday to close for the day. Walgreen's did not have any cyclophos but found some at Smith's for me; they were able to fill a prescription for an inhaler that Dr. Kuo had given me. But long waits were required at both phamacies and I was very tired when we got home. A tired feeling that has persisted thus far today.