Tuesday, January 26, 2016
First visit yesterday to BMT clinic since December 22
Dr. Atanackovic changed my Myeloma treatment schedule when I saw him last month. He has put the treatment on hold for an undisclosed reason, but possibly to determine the cause, or causes, of my frequent falls. I have 2 more 2mg methyl prednisolone pills to take at 4-day intervals and the Velcade infusions have been stopped. My visit yesterday was to receive an infusion of Zomera as a substitute for Aredia. I understood that this change meant that I would only be at the clinic for 20 minutes instead of 4 hours. Camille, my nurse for the day, set me straight on the amount of time we would spend at the clinic. The appointment was at 2:00 and we weren't ready to leave until almost 4:00 and needed to make a lab appointment in late February to come in and have booth sides of my port flushed. I won't go in again until March 21 for another infusion of Zomera, Camille told me that the port needs to be flushed at least once every 30 days.
I have a large water-like blister on my right elbow that I showed to Jennifer who then went and got Mary Steinbach, one of the PAs, to come look at it. I told them that it doesn't hurt and I m not sure how long I have had it, but it was present when we went to see Dr. Kuo early last month. He identified it as a bursa and wrapped it so tightly that the entire lower arm and hand swelled up so much that they seemed to be infected. Mary and Jennifer advised me to see a doctor about possibly draining it. I have zn appointment with our dermatologist in March and may wait until I see him.